The racial mess in the United States looks pretty grim and is painful to watch. We can be forgiven for being quietly thankful for Canada’s more inclusive society, which has avoided dramas like that in Ferguson, Mo. We are not the only ones to think this. In the recently released Social Progress Index, Canada is ranked second amongst all nations for its tolerance and inclusion.
Unfortunately, the truth is we have a far worse race problem than the United States. We just can’t see it very easily.
Terry Glavin, recently writing in the Ottawa Citizen, mocked the idea that the United States could learn from Canada’s example when it comes to racial harmony. To illustrate his point, he compared the conditions of the African-American community to Canada’s First Nations. If you judge a society by how it treats its most disadvantaged, Glavin found us wanting. Consider the accompanying table. By almost every measurable indicator, the Aboriginal population in Canada is treated worse and lives with more hardship than the African-American population. All these facts tell us one thing: Canada has a race problem, too.
How are we not choking on these numbers? For a country so self-satisfied with its image of progressive tolerance, how is this not a national crisis? Why are governments not falling on this issue?
Possibly it is because our Fergusons are hidden deep in the bush, accessible only by chartered float plane: 49 per cent of First Nations members live on remote reserves. Those who do live in urban centres are mostly confined to a few cities in the Prairies. Fewer than 40,000 live in Toronto, not even one per cent of the total population of the Greater Toronto Area. Our racial problems are literally over the horizon, out of sight and out of mind.
Or it could be because we simply do not see the forest for trees. We are distracted by the stories of corrupt band councils, or flooded reserves, or another missing Aboriginal woman. Some of us wring our hands, and a handful of activists protest. There are a couple of unread op-eds, and maybe a Twitter hashtag will skip around for a few days. But nothing changes. Yes, we admit there is a governance problem on the reserves. We might agree that “something” should be done about the missing and murdered women. In Ottawa a few policy wonks write fretful memos on land claims and pipelines. But collectively, we don’t say it out loud: “Canada has a race problem.”
If we don’t have a race problem then what do we blame? Our justice system, unable to even convene Aboriginal juries? Band administrators, like those in Attawapiskat, who defraud their own people? Our health care system that fails to provide Aboriginal communities with health outcomes on par with El Salvador? Politicians too craven to admit the reserve system has failed? Elders like Chief Ava Hill, cynically willing to let a child die this week from treatable cancer in order to promote Aboriginal rights? Aboriginal people themselves for not throwing out the leaders who serve them so poorly? Police forces too timid to grasp the nettle and confront unbridled criminality like the organized drug-smuggling gangs in Akwesasne? Federal bureaucrats for constructing a $7-billion welfare system that doesn’t work? The school system for only graduating 42 per cent of reserve students? Aboriginal men, who have pushed their community’s murder rate past Somalia’s? The media for not sufﬁciently or persistently reporting on these facts?
Or: us? For not paying attention. For believing our own hype about inclusion. For looking down our noses at America and ignorantly thinking, “That would never happen here.” For not acknowledging Canada has a race problem.
We do and it is bad. And it is not just with the Aboriginal peoples. For new immigrants and the black community the numbers are not as stark, but they tell a depressingly similar story.
If we want to fix this, the first step is to admit something is wrong. Start by saying it to yourself, but say it out loud: “Canada has a race problem.”
One of the things that irritates me about life in the 21st century is the constant evolution of laws and regulations designed to improve public safety, and protect people from unsafe practices. In 2018 the British Columbia government changed traffic laws related to how drivers are supposed to react when seeing flashing lights at the side of the road or highway.
I thought I knew the laws regarding flashing emergency lights or a siren from an emergency vehicle. I always do my best to move over to the side of the road, and generally get out of the way of an emergency vehicle when I see one coming up behind me in traffic. I had no idea that my obligations as a driver far exceed this simple behaviour. I always intend to obey traffic laws, within reason, and within safe driving practices on the road. But this new law catches me by surprise, although perhaps it shouldn’t.
In British Columbia, motorists are required to slow down and move over for all vehicles stopped alongside the road that have flashing red, blue or yellow lights. This includes maintenance workers, utility workers, police, fire, ambulance, tow trucks, Commercial Vehicle Safety Enforcement personnel, land surveyors, animal control workers, garbage collectors and other roadside workers.
Motorists must slow their speed to:
70km/h when in an 80km/h or over zone
40km/h when in an under 80km/h zone
If travelling on a multi-lane road, drivers must move into another lane to pass when passing stopped vehicles with a flashing light, where safe to do so. This provides roadside workers and emergency personnel with greater protection from accident and injury.
Rules and Penalties
Drivers failing to adjust their speed or failing to move over may receive a $173 traffic violation ticket that also carries 3 penalty points. Offences and infractions that include penalty points can lead to a driving prohibition.
This really sucks! Truthfully, when the young police office pulled me over I genuinely thought he was just being an ass, and had pulled me over for no real reason, just to be a smart mouth, not because I had committed an offense. I was so sure he was wrong I told him that I would meet him in court, and fight this wrongful ticket, which will cost me $173 and add three points to my driver’s license.
Unfortunately I was totally in the wrong, in this case, and the young whippersnapper police officer was totally right. So I guess I’ll hang my head and admit that I’m wrong about this, and just pay up.
But that doesn’t actually resolve the issue for me, because it begs the question as to how many other traffic laws have changed without me noticing. How many other people have missed out on knowing the changes in regulations and laws, which could cost them money, and perhaps put other people at risk because they don’t know the law.
There are thousands of new laws and regulations brought into effect in every jurisdiction every year. How in the hell does anybody know what’s illegal or not. Even if you spend every day in the library studying legislation and regulations you still wouldn’t know all of the important laws, let alone the minor irritants and misdemeanors.
Writing is a challenge for almost everyone, especially writing a blog that has its foundation in a discussion about something as amorphous as life, health and relationships. I’m often torn between wanting to share the most intimate thoughts with strangers, because to whom else can you admit these things: illness, weakness, debilitation, anxiety, pain, diabetes, social variance and relationship failures.
Even during my undergraduate years at UBC more than forty years ago I was an active writer. I worked with the student newspaper as a photographer and writer, as well as the editor of the social pages in my last couple of years with The UBYSSEY. This inevitably led me to courses in journalism and creative writing, and ultimately led me to an early career in the newspaper business, as a writer and photographer, the publisher of a small local newspaper, and a syndicated column carried in a tiny distribution across the Province of BC and into Washington State.
I also wrote poetry and short fiction, not much of it ever published, and never for any money. So that type of writing was purely a hobby, and it eventually led to me realising that it was likely going to stay a hobby rather than become a profession. What happened to my writing was the discover that all the money was in the business side rather than the creative side of the business. As a publisher I became far more interested in keeping the business alive than in writing stories or columns for consumption by my readers. Essentially I became a copy writer rather than a journalist, and eventually a sales person rather than a creative writer.
The same thing happened to my photography. There’s a lot more money on the advertising side of the street, and my creative photography evolved to shooting art and fetish photography mostly as a hobby, since I could never quite figure out how to charge enough for my work to make a go of it financially.
In one of my photography web sites, which concentrates on nude and fetish photography I have had in excess of 60 Million views of my images, none of which actually paid me except in ego rewards, and the thanks of some of my models who have used my site to help launch their modelling careers. My landscape and nature photographer web sites have a much smaller following, but curiously nature and other non erotic photography has grabbed more and more of my interest in the past few years. My nature photography has around 10 million viewers, and keeps me quite interested in continuing with my hobby.
I have also been an active blogger for many years, although until recently I primarily blogged about business subjects, on mortgage finance and real estate development, as both a broker and a real estate developer until recently. After retiring from these businesses I started to write a regular blog based on my health and fitness challenges, after struggling with diabetes, arthritis and various inflammatory diseases for at least the last ten years. After focussing my blog on health issues, the number of followers has increased every month, and I now have several thousand regular readers and followers.
I will admit that blogging has become a bit of an obsession, nearly replacing photography as my most active artistic expression. But I still don’t really do it for money, although my readership is growing steadily and I may soon acquire a sufficient number to make it worthwhile financially.
Writing matters to me, no matter how small my audience, and with a greater number of readers my sense is that it matters to other people too. If you like to express yourself, it can be highly rewarding. In addition to my photography, drawing, music and graphic design, writing gives meaning and shape to my life today, and I hope, for many years to come.
Global Warming is not the most important crisis facing the world’s human population at the moment.
One of the things that really concerns me about the current mass political movement around global warming is that it is distracting the human race from several other issues that are of far more immediate concern, and which also require a global response if there is not to be catastrophic outcomes, some of which are already far advanced.
And I am NOT saying the Global warming isn’t a serious danger to the health and quality of life of millions of people around the earth, mostly in the mid to long term, anywhere from twenty-five to fifty years from now. And while I believe that it is important, if we don’t address several other, far more pressing issues, half of the population of the globe with sick and dying, directly because of these other issues.
I specifically referring to serious medical problems arising from really bad lifestyle choices being promoted by governmental agencies, national and international disease associations, doctors, international food industry giants, dieticians, and the public media.
So what the heck could I possibly be ranting on and on about? There are three health crisis catastrophes happening right now that can have a bigger effect on the human race, today and tomorrow, than global warming.
Antibiotic resistance and superbugs
The explosion in pollution of the world’s oceans
Religious and political fundamentalism in the political area, and erosion of political and religious freedom
Industrial corruption around the world, and its impact on the peoples of the world.
No one article could even begin to explore these five serious hazards to humanity, and the quality of our existence on the planet Earth.
Personally I’m optimistic that the human race will figure out how to reduce or eliminate the human contribution to global warming. It won’t stop the climate from changing, either continuing to warm for the next few hundred years, or crashing into a new ice age, which is what many scientists were concerned about only a few years ago. It took a lot of effort to stop using fluorocarbons in spray cans, which was attacking the ozone layer only a couple of decades ago. Global warming is more of a concern than fluorocarbons, and will require a much more consequential response if the human race is to find solutions that will resolve our contributions to it. But call me Pollyannaish but I do believe that we will find technological solutions to a problem fundamentally caused by technology. As someone said to me, “it’s not rocket science.” No, it’s harder. But it be done.
I’m far less optimistic about our response to Metabolic Syndrome. Only recently have scientists started to realize the breadth and seriousness of the syndrom, which is directly caused by the consumption of excessive carbohydrates and sugars by populations of all ages, and is a now a global problem facing all of the nations of the globe. Recent research and publication have demonstrated a direct causative relationship between the over consumption of carbohydrates and sugars to the following disorders and diseases.
Cancers of the pancreas, heart, liver, kidneys
Chronic lung disease and cancer
Heart disease including cardiac arrest, arrhythmia and death
May be related to several mental disorders underlying depression and mania
The number of deaths in the world from the above categories of diseases, in 2019 caused by carbohydrate and sugar far exceeds the projected loss of life in the world from Global Warming by 2050 or even 2150 assuming that we don’t do anything to stop it. There is now solid evidence that over a third of all human beings alive today are suffering from Metabolic Syndrome, and many many many people die from it every single day. Far more than from wars, automobile accidents, distracted driving, alcohol abuse and drunk driving – all put together.
Superbugs present a slightly less ominous threat, if you don’t think about the fact that without effective antibiotics we are all vulnerable to diseases we once believed we had wiped out.
One in four infections is already resistant to antibiotics and other known forms of treatment, and 5,400 Canadians died last year from infections that until recently had been treatable. That’s according to a comprehensive peer-reviewed report presented by the Council of Canadian Academies this week.
That’s roughly double the number of Canada’s annual traffic fatalities and homicides combined.
These infections range from pneumonia to infections of the urinary tract, the blood stream and the skin. And their numbers are rising everywhere as international transportation carries every infection-causing microbe to every part of the world.
The report, When Antibiotics Fail, was prepared for the federal government by an expert panel. I was a member of this panel, chaired by Brett Finlay of the University of British Columbia.
Oceanic pollution, including plastics and other waste
Ocean Pollution: The Dirty Facts
We’re drowning marine ecosystems in trash, noise, oil, and carbon emissions.January 22, 2018 Melissa Denchak
The fate of our seas is not only up to the government or industry. Our individual, daily actions matter, too. You can start by reducing water pollution and runoff at home, being more mindful of your plastic consumption, or organizing a cleanup of your local waterway. You can also support the work of NRDC and other environmental advocacy groups as well as other businesses and organizations that work to preserve our coasts and waters.
Religious and political fundamentalism in the political area, and erosion of political and religious freedom
The news is full of examples of political terrorism around the world, including bombings and individual acts of terrorism against innocent civilians. This is terror on a retail scale and pales into insignificance against the damage being done to our political and religious freedoms around the world as a result of religious or political fundamentalism that denies people the right to their own religious beliefs, personal development and gender identification, even the right to exist as ethnic minorities in various parts of the world.
There are more people in concentration camps today, than during the second world war, with the vast majority of them in China. We in the west have been negligent in this, but mostly because we are also complicit in our own attacks on minorities and aboriginals. The United States and Europe are split right down ideological and religious seams that threaten the future safety of the world because of the increasing intolerance being shown to people with different religious or political beliefs of large parts of the population. Christian, Muslin and Atheist fundamentalists deny the very right to exist for anyone who dares believe something different than they. The intolerance of a pulpit bully today is the concentration camps of tomorrow.
Industrial corruption around the world, and its impact on the peoples of the world.
A new report has alleged that international medical and pharmaceutical companies are complicit in China’s organ transplant scandal.
The report has, for the first time, named 20 global companies profiting from China’s transplant trade, where innocent people are murdered in a state-sponsored campaign of forced organ harvesting.
The report supports China Tribunal’s Final Judgement in June 2019 which exposed China’s ‘wicked’ organ harvesting crimes and murder of innocent people as ‘Crimes Against Humanity’.
Western companies allegedly involved
The new report emphasises that China’s transplant system is ‘dependent on the import of devices for organ preservation’ from the West and has accused the Western pharmaceutical companies of using Chinese prisoners for testing transplant products.
Over 1.5 million people detained in Chinese ‘camps’ are seen as ‘ideal source of organs’ according to the report and the authors are calling for companies named in the report to answer to allegations or for state offices to “investigate international criminal activity”.
Global pressure is now mounting on China to stop the brutal murder of prisoners of conscience in a scandalous industry estimated to illegally earn the People’s Republic of China over $1bn (~€0.89bn) per annum.
Susie Hughes, Executive Director, International Coalition to End Transplant Abuse in China (ETAC), stated: “These companies are in a very powerful position because China’s transplant industry would falter without them. It is imperative they withdraw from China immediately to help save innocent people who are being killed for their organs.”
Hamid Sabi, Counsel to the China Tribunal, who recently raised the issue of forced organ harvesting in China for the first time at the United Nations said: “I welcome all new research confirming this horrifying issue. Organ transplantation to save life is a scientific and social triumph but killing the donor is criminal.”
Industrial greed and complicity in the dangers to human survival, both individually and collectively cannot be pursued with enough vigor. Companies are responsible for causing untold health hazards and killing millions upon millions through smoking, dietary corruption of the food chain, false information distribution to the public over years and years.
Global Warming is a Safe Enemy
I started this blog by saying that I don’t think that Global Warming should be at the top of our concerns about the future (and present) of the human race. There are lot of things to be concerned about, and Global Warming is just one of them.
The massive obsessive focus on Global Warming is a little like the obsession in the 1960’s with the nuclear threat and the idea that the Russians were going to wipe out the human race in their global arms race with the USA and the West. The obsession wasn’t totally misguided, it just missed the point that there were other things which should have been addressed and were not. The consequence of obsessing over one significant challenge facing the world, without paying attention to many of the other issues is highly risky.
I’m lost on a road to “God knows where.” Feeling scared. Uncertain. It’s my story right now, and I’ve good reasons for my emotional state. It’s not the first time in my life I’ve been lost or overwhelmed by circumstance. There’s no doubt my situation is difficult, and solutions to my problems seem beyond my current […]
Two years ago I wrote the above blog entry in my other blog “Out Here in Paradise” and re-examining some of the issues with which I was ensnared at that time have shown that progress is possible, even given serious and intractable problems.
Mine isn’t a new story. My health is not good, and is deteriorating over time. It is responding to my focus on trying to find a solution to my worst problems, and a way to cope with the things I won’t be able to control. My financial situation is a disaster, brought about by a series of mistaken steps, all of which seemed to be the correct decisions at the time, but have left me in serious debt, absent an income on which I can rely, and quite uncertain as to the potential for even basic survival, under my current situation.
Two years ago my health was a lot worse than now. At least it seemed so at the time. I had just got out of the hospital where I was extremely ill with pneumonia, with a new diagnosis of COPD, to go alone with my diabetes and chronic arthritic and neuropathic pain. I didn’t know it then but I also had the classic symptoms of fibromyalgia at work. I had a lot of good reasons to be depressed, just based on my health, not to mention a lifetime of fighting with bipolar depression even since my twenties, more than forty years.
So that was where I started to fight against continuing to fall down the Rabbit Hole, and started this blog, where I’ve largely focussed on discussing my attempts to improve my health and the quality of my life by taking intentional control of those things I can control.
If you follow this blog you will have read about my struggles with my medications, and coming to an understanding of how they interact with each other, and have many side effects, some of which still plague me.
You have seen my excitement of discovery when I read Dr. Jason Fung and realized that I can take control of my diabetes by making significant lifestyle changes, including intermittent fasting and radical reduction in the amount of carbohydrate in my daily diet. I came to realize that exercise every day is important, just not exactly for the reasons that I thought. I’ve lost a lot of weight on this journey, with the result being an increase in energy, a renewed sense of hope for the future, and a continued plan to improve matters further.
I’ve written about my challenges with my marriage and how we have evolved to a new set of understandings that allow for the possibility of staying intimate friends, while perhaps moving to a new description of our relationship. In our new relationship as Nesting Partners, rather than Husband and Wife, we talk far more openly about just about everything, than we even did in the past. Which is a good thing.
I’ve written about Polyamory, the state of being committed to being open to romantically or sexually loving more than one person at a time, within ethical boundaries and with full disclosure of the partners to each other and to every new person brought into relationship. We’re both struggling with our new definition but have continued to be loving to each other while figuring out how to move forward into the future.
In that Blog from two years ago I was feeling completely defeated financially as well. Things in this regard haven’t resolved themselves entirely, but I have made strides in dealing with my debts by filing bankruptcy. It wasn’t fun and it isn’t over yet, but it will be soon, and I will be able to move on into some meaningful employment or business. I’ve also learned the outcome of my problems with the Securities Commission, and while I’m far from sanguine about the Decision made, and the sanctions against me, I am in a place where I have begun to see how I can move forward from here. I have accepted entirely that I am accountable for my current financial situation, and if I am to rise again, it will be because I make it so.
Here are a few random thoughts about how I will get out of this mess.
Make a list, detail the issues including both those which seem unsolvable and those which appear to have potential solutions, no matter how unpalatable.
Take concrete steps to begin to address some of the issues. Whether or not I can solve everything, or even most things, I can do something about most things. I desperately need to break the hold that my emotional condition has on me.
Start listening better to the people in my life who care about me. At the moment they seem to believe in me more than do I myself.
Creatively analyzing my situation with a view to possible improvements in it. A little improvement is better than none. Maybe everything isn’t quite as far gone as I currently believe, maybe I can still pull myself back from the brink. Of if not, figure out how to ride out the storm caused by going over the edge.
Let go of the past, embrace the future. What is, is. What has already happened is done, over and can’t be changed. But what has not yet happened, may never happen, or may result in outcomes totally different than anticipated by my fears.
I haven’t entirely let go of the past, and I continue to work on those things from the past that still cause havoc in my life. What can say, two short years later, is that there is hope, and things have actually improved, through hard work, a renewed practice of personal discipline in following my new lifestyle, and a willingness to be open and transparent to my partner, which means a lot less anxiety of both our parts, and a better, if not a little more complicated, redefinition of our lives, both together and apart.
How has pain been a complex problem in your life? How has pain interacted with your movement, energy, sleep, social life, finances, identity, memory, and mood?
Mastering Pain Institute
After listening to and reading the materials in the 1st leasson of the Pain Mastery Class it asks the student to answer the above questions.
How has pain interacted with my movement? As pain from various causes has increased over the past few years I have observed that my ability and willingness to move has undergone an uncomfortable metamorphosis. Simple tasks like walking, bending over, picking up items, getting dressed, doing my toe nails, making the bed… etc. have all become much more difficult.
Neuropathic pain has combined with arthritis to make steering the car for long periods increasingly painful. I alternate from my left to my right hand constantly as I drive, because the pain builds up in each as it is used. Eventually the pain is too great in both hands and I have to take a break. The pain in my legs and feet make driving hard as well, and certainly limited my pleasure from doing so. Driving a car is one of my great pleasures, or, it used to be one of my great pleasures and it represented a kind of freedom that is now gradually disappearing from my life.
The same can be said for a lot of routine physical tasks, all the way from making the bed to cleaning the mirrors in my bathroom. I didn’t used to mind housework or gardening but it is now so painful to mow the lawn that I’d rather let it grow twice as long as I used to. These type of restrictions have inevitably reduced my freedom of movement, and my interest in and willingness to do routine, simple life tasks.
How has pain affected my energy? Anybody who suffers from chronic pain will attest to the fact that constant, unrelenting pain is exhausting. There is almost no time when I’m not tired and so sore I feel like I really just want to lay down and sleep for a while. Even a nap would seem like a relief, if I can sleep, that is.
The net available energy is a function of pain in my body. The more severe the pain becomes, the less energy I have. And not only to do life in general, but in having the interest and energy to participate in the things of life. A lack of energy is behind so many other deficits experience by people with chronic pain that it tends to blind us to how serious it actually is. Without sufficient energy to function properly nothing actually works the way it is supposed to work. How the hell am I supposed to do my job at work, when I hardly have enough energy to get there in the first place every day?
How does pain affect my sleep? To most of us with chronic pain sleep is seldom deep or really very restful. Not a single night of sleep goes by without being disrupted, again and again by waking fully or partially because of pain in the body. For me it is all sorts of different parts of the body and different types of pain, but it all hurts, and it all makes me awaken at some point during sleep. If I wonder why I’m so damned tired all the time, I simply have to remind myself that I really haven’t had a decent night’s sleep in years.
I’ve been diagnosed with sleep apnea, but sleep apnea really isn’t the reason I’m awake half the night. It’s the pain, the pain. Snoring is a part of it. Blocked airways aggravates it. But pain causes sleep interruption, over and over again, every single time I go to sleep.
How does pain affect my social life? What social life? Who really has the energy to maintain a social group or friendships when you’re in constant pain? It takes energy I don’t have and mobility that is a constant struggle, simply to get out and visit with people. I’m no longer the happy go lucky guy I used to be. I try not to spread my pain around, or make my kids and grandkids suffer from my experience of pain. But I wonder if my increasing isolation from them is at least partly because I do longer know how to overcome my pain for long enough to actually properly engage with people.
And being socially isolated also increases my experience of pain, because lacking real human contact with others is not only uncomfortable, but it’s also actually harmful physically because it encourages inactivity and passiveness. Instead of getting out and doing things with the people I love, I stay at home, watching television, at least partly because it’s less painful than the alternatives of getting out of the house, and doing the things necessary to have a life.
How does being in pain affect my finances? This is one of the things that is most humiliating about being in pain. Instead of being vibrant and capable, I’m tentative and withdrawing from challenges. I used to love going to the office and taking on new challenges, meeting new people, creating new financial opportunities for myself, and for my staff. Now I have no staff, and I’ve been afraid for years of taking on jobs that I know I’m qualified to do because I’m afraid that I’m going to let them down, or worse, prove myself to be incapable of handling the physical and emotional demands of the work.
In addition, my increasing health problems cost a lot of money, which I am now having to pay with a lot less income, due to my reduced employment capabilities. I struggle to manage my prescription deductibles and copays. And that’s for the prescriptions, which doesn’t actually include any pain medications I can trust. Nothing the doctor has prescribed for pain has actually helped very much, if at all. I know that opioids would be more effective than OTC drugs but I also know that they are highly addictive, and have major other problems that I don’t need to add to my pain.
And being chronically short of money, as well as in pain, means that I can’t take advantage of one of the things I used to do a lot, which was going out to nice restaurants and have good meals with friends. Shortage of money means that I’m socially isolated by it, as well as by my resentment over finding myself in this situation. I never wanted to be dependant on anyone else but I find myself in a situation that make this every more a fact of life.
How does pain affect my sense of identity? Truthfully, I don’t really recognise myself any more. I no longer feel like the man I used to be, and I certainly don’t have the confidence I have always had. I’ve always thought of myself as a highly charged, somewhat hyperactive and oversexed Type A personality. If I had faults they were likely the faults of thinking that I could do anything, be anybody, accomplish anything. A little bit of humility probably wasn’t a bad thing for me to learn, but pain has driven me to distraction. The amount and persistence of pain has now reached proportions that are disabling my sense of self to a point of no return. I don’t actually know what it would look like for me to be me, the way I have always been. So damage to my sense of identity is a real cost of being a victim of chronic pain.
How does pain affect my memory? My partner says that I’ve become a lot more forgetful than previously. I’m not sharp anymore, and I don’t automatically pick up on things so quickly. I don’t think I’ve lost my marbles, but I get confused more easily and mix things up, despite my best efforts to not do so. It means I slow down, because I can no longer count on my memory for important information. I’m a lot more cautious than I used to be, if for no other reason than I hate being unable to remember even the simplest facts or common words.
I’ve always been a prodigious reader, at one point reading more than a book a day, not to mention newspaper and magazines. Now it takes me a week to read a novel, and a month to work through a non-fiction title, no matter how interested I am in the subject. I don’t remember names very well, I never did, but I’m also losing the ability to remember what books I’ve read or which ones I liked or didn’t like. I find myself half way through the first chapter of novels only to realize that I read the damned thing six month ago. So yes, memory is being affected negatively, if only because I’m so distracted by the constant pain interrupting the flow of my thoughts and feelings.
How does pain affect my mood? I was diagnosed as being bipolar when I was about thirty years old, after a major breakdown and depression. After being hospitalized for six months I came out of the hospital with somewhat better emotional management tools than I had previously. Relatively quickly I abandoned the prescriptions for bipolar I had been given, because they made me feel like I was living in a fog. And I reconciled myself to living with vivid emotional ups and downs. So depression and mania have long been a part of my nature, and my life. I’ve done well in managing to live a full life despite these problems, but now it feels like depression stalk me, without the accompanying manio to provide any balance to it.
There are two kinds of depression with which I struggle, one of which is a direct result of serious and chronic pain. It’s tough to get out of being depressed when you feel like you’re under a constant pressure cooker caused by physical and mental pain. This past weekend, in addition to chronic neuropathic pain in my hands and feet, arthritic pain in my shoulders, fingers, hands, I was also slayed by a serious migraine headache. I haven’t suffered from migraines on a regular basis for years, ever since I started practicing a form of self-hypnosis that seemed to be effective at shortening their duration, and eventually led me to being able to predict and prevent the worst of them.
Even that ability seems to be beyond my control these days, because it’s pretty hard to meditate when I’m in so much pain that I can hardly sit still.
I don’t know if this exercise in counting the ways that pain affects me is supposed to make me feel better, but it hasn’t yet. I also suppose that to defeat an enemy I first have to understand the enemy and all the territory it has staked out in my life. This is the exercise from Chapter 1 in my program to begin to manage my pain. I hope the next exercises don’t leave me here.
This train goes between cities, further between nightmares and dreams, it travels on track laid by dying men that form the body nightmares.
Familiar faces, human, leave our darkening world, shadows answering no cries in the fog.
Do we forget who ride the empty boxcars still searching for places to live in a dream country for their own sons,
We travel with their souls, here in the dining car, distinctly uncomfortable with the smell of broiled lobster and sizzling steaks.
Have we the right to say or the guts to whisper: You have it all WRONG and can we take the pervasive laughing clacking of the tracks
I wrote the poem above when I was in second year university, many years ago, influenced mostly by my experiences working on the Canadian National Railway. In the poem I am present to the existence of the thousands of workers imported into Canada to build the railways, and how many of them died in the process.
Many of the construction and railway workers were sent back home, mostly back to China, where they reunited with their families. Many, however, ended up staying in Canada, effectively separating them from their wives and children forever.
It is easy to forget that modern civilization was built on the backs of indentured and enslaved people, who still are denied any recognition for their real lives and losses.
In the current era, in a Canada now highly ethnically and racially diverse, these ancestors can finally have a say in who we are as a people. Acknowledging these people also opens the way to rediscover the indigenous peoples who have always been here. Long before European settlement the first nations were already here.
Before we can truly be the civilization we could be, we need to see and acknowledged these people, as well as the part of ourselves still enriched by their sacrifice.
Today is Canadian Thanksgiving Day. This is the day when I’m supposed to be grateful for all the good things in my life, and emotionally let go of whatever negative things are holding me back from a happy and productive life.
All of that is good. In theory.
But it’s hard to do. It’s a lot easier to list the things I’m mad about, or for which I’m resentful, than to account for all the good things in my life, for which I’m grateful. That’s not to say that I’m not, that is, not grateful.
I’m grateful for the people in my life who go out of their way to make my life better, of which there are any number, including my domestic partner who puts up with my frustrations and anxieties, and continues with me in her life, despite no longer wanting to be married to me, or believing that there is any romantic future for us. She’s probably right but still has simply accepted me as I am, despite my faults. So the two of us struggle to go forward in this fundamentally undefinable relationship and cause each other, and ourselves, the least emotional damage possible. And although this relationship isn’t what either of us imagined forty years ago, it continues to sustain me in the present. She still inspires me with her generosity of spirit towards.
I am grateful to my family, including my kids and my siblings, trying not to let resentment fill my heart for all the things I’d hoped would be, but are not. When people love me its hard when its not exactly the way I’d like to be loved. But who am I kidding? The fact that they are willing to be a part of my life is what is important, and I am appreciative when they do spend some time with me.
I’m also happy with my progress towards a healthy future. Intermittent fasting and lifestyle changes I’ve already made are making a real difference in my health, even just a few months into the process began with my decision last spring to reevaluate my medications and side effects. My son’s consistent input about carbs and sugar has encouraged me to stick to my guns when comes to fasting, and has helped me to lose 35 pounds. I do feel better, and I’m grateful for that.
But I still have a hard time not being angry about the things I’m facing in the future. It doesn’t matter really if they are a direct result of my own actions, or not. Chronic pain is very difficult to ignore, especially when it is quite severe, most of the time. I’m taking it on faith that losing weight will improve matters a little, but I’m not counting on it. Pain has become my constant companion, and it’s damned hard not to complain about it. Not that it does any good, but saying something does relieve some of the pressure of feeling so isolated and alone in the pain. Sometimes people think that I resent them because they don’t really express much sympathy, or even really seem to understand what the hell I’m talking about. Actually I don’t resent them, what I resent is the pain itself, and the fact that nothing really helps.
I’m also really resentful about the total destruction of my business and professional career, as a result of having made some stupendously stupid mistakes which cost me everything, including putting limits on my future I’m not quite sure how to endure. It doesn’t actually help to know that there were things I could have done differently that might have made all the difference. I didn’t do those things, so here I am. I’m critically broke, impoverished by the consequences of these mistakes. I also resent being ashamed of my mistakes and lack of better judgment. How can I be sure that I’ll do any better in the future?
But today is Thanksgiving Day, so I’ve thought a lot about those things that matter to me. There is a better future ahead, even if I’m not quite sure how to get there. I’m still alive, and I’m in better health than for a long time, and have more energy than for probably ten years. So I grateful for that.
I’m also grateful for my blog. Expressing my deepest feelings helps me come to terms with them. So I’m also grateful for my faithful readers, who have been so encouraging to me as I have been on this fasting journey. Thank you.
Healthy people consult professionals before implementing significant changes in our medications or lifestyle choices
Healthy people are patient and persistent in overcoming health or lifestyle challenges.
Healthy people accept total accountability for our own health, without taking on blame for things beyond our control.
What can you do to improve your AIC when you’re feeling terrible from a variety of symptoms and conditions, many of which are either a direct result of your diabetes, or at least are indirectly impacted by persistent high blood sugars.
There are any number of things you need to deal with in order to make real change. The most important of these things is probably NOT your diabetes. At least not directly.
I’ve been a type two diabetic for many years. Diabetes probably started with me in my twenties although my first symptoms didn’t start to show up until I was nearly forty. I’m now in my sixties and I’ve been on insulin for more than fifteen years. That means I’ve been pricking my finger at least once a day since I was fifty years old, and injecting myself with insulin ever since.
The one thing I can say about my diabetes is that it has progressed in a predictable way, gradually causing negative effects to my body. All the way along the road various doctors have given me a lot of prescription medications, as well as a lot of advice. I’ve been to diabetic clinics where nurses and dieticians have attempted to teach me how to control my blood sugars through diet and exercise.
When I was first diagnosed with diabetes I even received counselling, to try to make sense of Why Me? I think everyone feels victimized by negative health conditions, whether it’s COPD, Heart Disease or Cancer. The answers to Why Me? are both existential and practical.
There are two parts to the answer. First, there is the part of Why Me? over which you have no control, never did, never will have and makes no difference anyway. Whether it’s fate, God, a cruel universe, DNA or the conditions of your life (including a bad diet, smoking, poor or no exercise, etc.) leading up to becoming diabetic none of them actually matter in coming to terms with the emotional fallout of Why Me?
Truthfully, there are many things I could have done differently in the past that might have made a huge difference in my experience of diabetes now and in the future. But for whatever reasons I had, or gave myself, I did what I thought was within my capacity to change in my habits and behaviors.
You can check your blood sugars regularly with you meter tests, get your AIC blood work done in the lab and consult with your doctor as often as she thinks is useful or necessary. You may make changes in your diet and exercise program, and do your best to lose weight and keep it within certain boundaries. And if you do all these things from the beginning, your diabetes will be stable and you will reduce the consequences of this disease.
For most of us, however, no matter how much we say we care about our health, we’re not really willing to do whatever is necessary to fundamentally change our outcomes. We do some of it, maybe ever some of it every day with serious intentions.
This is the Second Part to Why Me?
This is the part of Why Me? you can control if you choose to do so. So how do you change what you do and how you act, to have a real impact on your own health? This goes back to me saying that it’s not actually about diabetes, or even about your physical health.
It’s really about becoming conscious about who and what you want to be in your own life. We’ve all been beat-up by life along the way. Parents, friends, lovers, partners and even strangers have both positive and negative impacts on our self esteem. Why is that? Why do we let anyone else impact how we feel about ourselves, and how we make positive or negative choices about our lives, including those choices about dealing with negative health outcomes resulting from poor choices.
I hate to say this but “Who cares?” It doesn’t matter what happened in the past, or how you allowed yourself to be negatively influenced regarding healthy living. It really doesn’t matter, but only if there is some way you can turn your life around and ultimately take control of those things that you can control.
How to take control and like it.
The first thing is to understand what it is you need to do to make things better. If you don’t know what you need to do, it’s pretty hard to decide what to do. So find out. See you doctors. Read everything you can find out about current treatment alternatives, and inquire from other people their experiences. Read blogs. Get new referrals to diabetic clinics and resources. Talk over alternatives with your specialist. Make a plan of action with on a few, specific steps, done regularly and persistently.
Don’t try to do everything all at once. Set limited goals with realistic objectives. For example: Don’t try to lose a lot of weight in a week or even a month. Lose weight in amounts that can actually be achieved. If you find it too hard to do by yourself, join a club or a weight loss program which comes with monitoring and emotional support. But don’t blame the program if your weight loss isn’t happening. Be totally honest with yourself, and reset your goals. Weight loss is fundamental to improved diabetic outcomes and lowering blood sugar.
If it isn’t happening, then look elsewhere for support, but don’t give up on necessary change. Remember that whatever happened yesterday is no longer relevant unless it results in change today. Guilt is useless unless it is accompanies by a renewed sense of personal accountability.
When I graduated many years ago from UBC my school motto was TU UM EST. What I didn’t realize was how powerful an idea that really is.
by bureaucratic delivery of medical devices and services
Two nights ago I went to my local Shoppers Drug Mart in Walnut Grove, Langley to submit my prescription for my new type of FreeStyle Libre sensor and meter, as well as my two new types of insulin. It was a frustrating day yesterday sorting it all out, without yet having received anything… once I come up with the necessary funds. All told about $268.00 out of pocket, with $178.00 eventually refundable from Blue Cross once I send in the receipt showing that I’ve paid it.
My new insulin prescriptions are 85% covered by Blue Cross unlike my previous prescription for insulin which was covered entirely, once my initial 100 deductible is paid for the year. I don’t know why this is so, but is probably a result of this being newer technology and newer method of managing diabetes in BC and, for the moment, is grudgingly covered by Blue Cross under the agreement with my wife’s employer, and then only to 85% of the cost of the newer medications.
Money required for medications and equipment causes a lot of anxiety as money is particularly tight on my government pension, and I’m counting the days to the next pension check for when I’ll have any money to spend, pretty much on anything.
I’m don’t mean to be grumbling about my current financial situation. First of all its mostly my own fault. Secondly, the only person who can do anything about it is me, so there’s not a lot of point in getting angry about it. Still, coming up with an extra $300 all at once, halfway through the month is going to take some doing.
Assuming that I can figure out how to get the money together, it looks like I’ll be starting my new insulin regime tomorrow or the next day, and will start using my new sensor soon. I am both excited and anxious about it.