Lost on the road to God knows where. — Out Here in Paradise

Sculpted by Donald Wilson 1982

I’m lost on a road to “God knows where.” Feeling scared. Uncertain. It’s my story right now, and I’ve good reasons for my emotional state. It’s not the first time in my life I’ve been lost or overwhelmed by circumstance. There’s no doubt my situation is difficult, and solutions to my problems seem beyond my current […]

Lost on the road to God knows where. — Out Here in Paradise

Two years ago I wrote the above blog entry in my other blog “Out Here in Paradise” and re-examining some of the issues with which I was ensnared at that time have shown that progress is possible, even given serious and intractable problems.

Mine isn’t a new story.  My health is not good, and is deteriorating over time.  It is responding to my focus on trying to find a solution to my worst problems, and a way to cope with the things I won’t be able to control.  My financial situation is a disaster, brought about by a series of mistaken steps, all of which seemed to be the correct decisions at the time, but have left me in serious debt, absent an income on which I can rely, and quite uncertain as to the potential for even basic survival, under my current situation.

Lost on the road to God knows where. — Out Here in Paradise

Two years ago my health was a lot worse than now. At least it seemed so at the time. I had just got out of the hospital where I was extremely ill with pneumonia, with a new diagnosis of COPD, to go alone with my diabetes and chronic arthritic and neuropathic pain. I didn’t know it then but I also had the classic symptoms of fibromyalgia at work. I had a lot of good reasons to be depressed, just based on my health, not to mention a lifetime of fighting with bipolar depression even since my twenties, more than forty years.

So that was where I started to fight against continuing to fall down the Rabbit Hole, and started this blog, where I’ve largely focussed on discussing my attempts to improve my health and the quality of my life by taking intentional control of those things I can control.

If you follow this blog you will have read about my struggles with my medications, and coming to an understanding of how they interact with each other, and have many side effects, some of which still plague me.

You have seen my excitement of discovery when I read Dr. Jason Fung and realized that I can take control of my diabetes by making significant lifestyle changes, including intermittent fasting and radical reduction in the amount of carbohydrate in my daily diet. I came to realize that exercise every day is important, just not exactly for the reasons that I thought. I’ve lost a lot of weight on this journey, with the result being an increase in energy, a renewed sense of hope for the future, and a continued plan to improve matters further.

I’ve written about my challenges with my marriage and how we have evolved to a new set of understandings that allow for the possibility of staying intimate friends, while perhaps moving to a new description of our relationship. In our new relationship as Nesting Partners, rather than Husband and Wife, we talk far more openly about just about everything, than we even did in the past. Which is a good thing.

I’ve written about Polyamory, the state of being committed to being open to romantically or sexually loving more than one person at a time, within ethical boundaries and with full disclosure of the partners to each other and to every new person brought into relationship. We’re both struggling with our new definition but have continued to be loving to each other while figuring out how to move forward into the future.

Me as a kid.

In that Blog from two years ago I was feeling completely defeated financially as well. Things in this regard haven’t resolved themselves entirely, but I have made strides in dealing with my debts by filing bankruptcy. It wasn’t fun and it isn’t over yet, but it will be soon, and I will be able to move on into some meaningful employment or business. I’ve also learned the outcome of my problems with the Securities Commission, and while I’m far from sanguine about the Decision made, and the sanctions against me, I am in a place where I have begun to see how I can move forward from here. I have accepted entirely that I am accountable for my current financial situation, and if I am to rise again, it will be because I make it so.

Here are a few random thoughts about how I will get out of this mess.

Make a list, detail the issues including both those which seem unsolvable and those which appear to have potential solutions, no matter how unpalatable.

Take concrete steps to begin to address some of the issues.  Whether or not I can solve everything, or even most things, I can do something about most things.  I desperately need to break the hold that my emotional condition has on me.

Start listening better to the people in my life who care about me.  At the moment they seem to believe in me more than do I myself.

Creatively analyzing my situation with a view to possible improvements in it.  A little improvement is better than none.  Maybe everything isn’t quite as far gone as I currently believe,  maybe I can still pull myself back from the brink.  Of if not, figure out how to ride out the storm caused by going over the edge.

Let go of the past, embrace the future.  What is, is.  What has already happened is done, over and can’t be changed. But what has not yet happened, may never happen, or may result in outcomes totally different than anticipated by my fears.

Lost on the road to God knows where. — Out Here in Paradise
Self Portrait of me as a young man.

I haven’t entirely let go of the past, and I continue to work on those things from the past that still cause havoc in my life. What can say, two short years later, is that there is hope, and things have actually improved, through hard work, a renewed practice of personal discipline in following my new lifestyle, and a willingness to be open and transparent to my partner, which means a lot less anxiety of both our parts, and a better, if not a little more complicated, redefinition of our lives, both together and apart.

Frustrated

by bureaucratic delivery of medical devices and services

Two nights ago I went to my local Shoppers Drug Mart in Walnut Grove, Langley to submit my prescription for my new type of FreeStyle Libre sensor and meter, as well as my two new types of insulin. It was a frustrating day yesterday sorting it all out, without yet having received anything… once I come up with the necessary funds. All told about $268.00 out of pocket, with $178.00 eventually refundable from Blue Cross once I send in the receipt showing that I’ve paid it.

My new insulin prescriptions are 85% covered by Blue Cross unlike my previous prescription for insulin which was covered entirely, once my initial 100 deductible is paid for the year. I don’t know why this is so, but is probably a result of this being newer technology and newer method of managing diabetes in BC and, for the moment, is grudgingly covered by Blue Cross under the agreement with my wife’s employer, and then only to 85% of the cost of the newer medications.

Money required for medications and equipment causes a lot of anxiety as money is particularly tight on my government pension, and I’m counting the days to the next pension check for when I’ll have any money to spend, pretty much on anything.

I’m don’t mean to be grumbling about my current financial situation. First of all its mostly my own fault. Secondly, the only person who can do anything about it is me, so there’s not a lot of point in getting angry about it. Still, coming up with an extra $300 all at once, halfway through the month is going to take some doing.

Assuming that I can figure out how to get the money together, it looks like I’ll be starting my new insulin regime tomorrow or the next day, and will start using my new sensor soon. I am both excited and anxious about it.

Wonderland?

Sometimes I feel as if I have fallen down the rabbit hole into an alternate universe, one in which I’m no longer a person.  The world has also changed, seemingly irretrievably, into a place without any kind of safety, security, and surety.

Mum used to complain to me, from time to time, when she was retired from teaching, that she felt invisible, of no consequence, and therefore, of no value to anyone, including to herself.  I remember telling her that, of course, she had meaning and value, at least to her children, and that we value her for her wisdom and accumulated life experience.  I believe now that my comments were, at best, well-meaning but false.

Feelings are not facts, although they weigh us down as if they are real.  I am going to be celebrating my sixty-fifth birthday in less than a month.  Supposedly this means that I should be enjoying the opportunity to retire from active working life, and into a pleasant meander down the road of a new journey, not so bound up in ambition or goals.

Instead, I head into retirement with serious complications of diabetes and COPD, chronically exhausted, in constant arthritic and neuropathic pain.  My professional life is in disgrace, and my finances are completely destroyed.  My marriage is a shambles, a mere shadow of meaning and purpose I believed it to be. Whatever self-esteem I once enjoyed has been systematically eroded to the point where I have become self-effacing and ashamed.

Accomplishments once achieved with pride, are now rued as pointless, as they were not sustained, nor followed up with long-term success.  Professional competence and pride in my knowledge and skills are now the pathetic memories of a fallen champion.

I have crashed and burned before, and arose from the ashes to take on new challenges and build a life again. I’m told by professionals that I need to let go of the past, forget my shortcomings, and learn to live with my current life and health circumstances.  In short, I need to refocus on a new future.  Build again a life worth living,  a life into which joy and laughter can once again be a part.

There is still much of value in my life, and turning to those people who continue to befriend me and support me is a part of that future.  Gratitude for what I have now will be a good start.

Still, it is difficult to look around me and see a landscape filled with characters I don’t recognize and don’t think I really want to get to know.  What would be even more helpful would be if I could find a mirror that shows me the man I once thought I was.  The mirrors in Wonderland show me a person I scarcely recognize, and who I really don’t want to be.